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Staying safe

Dementia wandering: keeping them safe without locking them in

The Dementia House Call · Letter No. 14

If your person is missing right now: search the house and yard for no more than fifteen minutes — or not at all if it is dark, very hot or cold, there is water or a busy road nearby, or the car is gone — then call 911 and say “a vulnerable adult with dementia is missing.” The full steps are here.

Some version of this story comes up on house calls again and again: “I found the front door open at four in the morning. He was halfway down the street in his pajamas, looking for the bus to work. He retired thirty years ago.”

Usually, that time, nobody was hurt. But the person telling it hasn’t slept properly since, because now they lie awake listening for the door. That is the real cost of wandering in most homes — not only the night they get out, but every night after, spent half-awake on guard duty.

So this letter has two jobs: to make the leaving less likely, and to let you sleep again.

They are not wandering. They are going somewhere.

About six in ten people living with dementia will wander at least once, and many do it repeatedly. The word makes it sound aimless, and often it isn’t. From inside their world, the walk frequently has a purpose that makes complete sense:

This matters because it changes what works. A lock answers the question “how do I stop them.” The better first question is “where are they trying to go, and what are they looking for?” Write it down for a week — the time, the door, what they said — and a pattern very often appears. The late-afternoon exit is often the sundowning hour. The 3 a.m. exit is often the bathroom.

First, is this new?

Wandering that has been building for months is the illness. Wandering or pacing that started suddenly this week is something else until proven otherwise — pain, constipation, a urinary tract infection, a new medication, or a delirium. A sudden change is medical; that needs a call to the doctor today, not a door alarm. The rules for which call to make are in when to call the doctor and when to go.

How to prevent wandering: meet the need before you guard the door

Walk with them, not against them. Blocking the door, arguing, or taking an arm tends to turn a walk into a fight, and a frightened person pushes harder. Put your coat on instead. “Let’s go together.” Walk a little way, talk about the place they were heading, then loop gently back. The urge usually passes long before the walk does.

Use up the restlessness in daylight. A real walk in the morning and something to do with their hands in the afternoon reduce the evening pull, and no device does that part for you. A day with nothing in it tends to produce a night with too much in it.

Answer the body. A regular bathroom trip before bed and during the night, a snack in the late afternoon, a drink offered rather than asked about.

Make the door less interesting. A curtain across it, a coat rack moved away from it, keys and purse out of sight — the objects that say “time to leave” set the idea off. A lock fitted high or low, outside the usual line of sight, is often all it takes when someone is at home with them.

One rule, without exceptions: never lock them in alone. A person with dementia locked into a house, with nobody there, cannot get out in a fire. Locks are for when you are home, and whatever lock you fit, you must be able to open it from the inside in seconds, without hunting for a key.

Wandering at night: the alarms that let you sleep

Honesty note: some links below are affiliate links — if you buy through one, this site earns a small commission at no extra cost to you, which helps keep these letters free. These are categories I recommend on house calls; the specific products are examples, not the only good ones.

You cannot stay awake every night for years, and you should not try. What you need is something that stays awake for you and tells you the moment they are up. None of these stops someone leaving or falling on its own — they buy you the head start. Three kinds of alert do most of the work:

A door chime. The simplest and least expensive: a door-open chime sounds in your room when the front or back door opens. It is not a lock and not a restraint. It just gives you the head start that matters.

A bed-exit alarm — ideally a silent one. This is the one most families don’t know exists. A thin pressure pad goes under the sheet, and when they get up, a pager beside you goes off.

Choose a set where the alarm sounds on your pager, not at their bedside: a loud alarm beside a confused person at 3 a.m. can frighten them, and a frightened person may rush and fall. The Caregiver Alert System bed set with a silent transmitter (about US$110 as of September 2026) works this way; set the pager to sound as well as vibrate so it wakes you. It tells you they are up, so you can get to them — often in time to walk them to the bathroom. It won’t stop every fall; how close you sleep and how fast you can reach them matter too.

A motion sensor in the hallway. If they get up from a chair rather than the bed, a wireless motion sensor (about US$38 as of September 2026, pager sold separately) can cover the route to the door. The maker’s pager takes up to four sensors — check that the listing names your pager model before you order.

What I would not buy. Bed rails, to keep someone in bed — a confused person climbs over them and falls from higher up, or gets trapped between the rail and the mattress. Belts, vests, and anything else that holds a person in a chair or bed. Restraints increase injury and distress; they don’t reduce wandering. If you are being told that is the only option, ask for an occupational therapy assessment first.

Prepare for the day they get out anyway

Even in careful homes, it happens. The families who do best are the ones who got ready on a calm afternoon:

If they are missing: the first fifteen minutes

Check the house and yard quickly — closets, the car, the garage, under beds, the shed. Give it no more than fifteen minutes. If it is dark, very hot or cold, there is water or a busy road nearby, or the car is gone, skip the search and call 911 straight away.

Otherwise, call 911 when the fifteen minutes are up. Do not wait longer. There is no waiting period for a missing person with dementia, and the risk rises with every hour. Say the words “a vulnerable adult with dementia is missing.” Have the photo and the list ready. If the car is gone, say so straight away — people who drive can end up very far from home.

Search close, and check water early. Most people with dementia who go missing on foot are found within a mile or so of where they were last seen, often in brush, a ditch, a creek or other water, or somewhere they have become stuck. Check ponds, pools, and creeks early.

They often won’t call out for help and may not answer when their name is called, so look, don’t just shout. They tend to keep going in one direction until they get stuck, or head for a familiar old place — so search along the line from the door they left by, and at the places on your list.

When your person is found, expect them to be frightened, exhausted, and perhaps angry. Skip the lecture — they won’t remember the point of it, only how it felt. Warmth, a drink, the bathroom, and a check for injuries, sunburn, or cold. If they were out for hours, in the cold or heat, or have fallen, get them assessed.

Borrow this sentence

“Let’s get our coats and go together.” Then walk a little, talk about where they were going, and turn back.

One line for the log: the time, the door, and what they said they were looking for.

And for you

If you are sleeping with one ear on the front door, you are already doing the most exhausting job in this illness, and doing it without a shift change. An alarm is not a failure of vigilance. It is how you keep being able to do this. And if the nights have become the whole problem — if they are out several times a week, or you haven’t slept through in a month — that is not a gadget question anymore. It is time for a bigger conversation, and you are allowed to have it: is it time for long-term care?

Free

When to Call the Doctor, and When to Go — the one-page traffic light for the worrying moments. Red, amber, green — and the sentence to borrow when you are not being heard. The printable caregivers keep on the fridge.

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Wandering, night waking, “I want to go home” and the rest of the daily battles each get one clear page — what to do in the moment, what makes it worse, and when it’s medical — in the Middle-Stage Survival Guide.

Get the Middle-Stage Guide — CA$39 Or the Care Binder, for the logs and lists →