← All letters

Start here

Free dementia printables vs. a stage guide

The Dementia House Call · Letter No. 13

If you have searched for dementia help online in the last month, you have met the wall of printables. Free trackers, free checklists, free activity sheets, free care plans, $3 planners, $7 bundles, and somewhere behind all of it a $29 guide that will not tell you what is inside until you pay.

Families ask me a fair version of this question all the time, usually apologetically, as though wanting to know what they are buying is rude. It is not rude. Money is tight in a caregiving year, and most of what is being sold to you was written by somebody who has never sat in your kitchen. So here is the honest answer, including the parts that are not in my interest.

What the free printables are genuinely good at

Quite a lot, actually, and I would rather you use them than not.

Blank logs are useful. A medication list, a symptom tracker, a sleep chart, a two-week behaviour record, a page of emergency numbers on the fridge — these are real tools and they cost nothing. When a family arrives at an appointment with a filled-in tracker, the visit changes. I can see the pattern instead of guessing at it. That is worth more than most people realise, and it does not require anyone to have paid for the paper.

Checklists are useful too. So are calendars, so are activity sheets on a wet Tuesday afternoon, and so is a one-page overview of the stages — which is exactly why ours is free and always will be. If a thing can help you and it can be given away, it should be given away.

If your budget for this is zero, that is a completely workable place to start. Print the free tracker. Write the medication list. Put the emergency numbers where the fridge magnets are. You have done the highest-value thing already.

What a blank page cannot do

Here is the limit, and it is a real one: a tracker records what happened. It does not tell you what to do.

A blank behaviour log assumes you already know which behaviours matter, what makes them worse, and which ones mean you should stop managing and pick up the phone. A blank care plan assumes you know what belongs in a care plan. The form is the easy half. The judgement is the half you are missing at 5 p.m. on a Thursday when your mother will not get in the shower and you have tried every voice you own.

Nobody stands at the bathroom door with a tracker. That is not a criticism of trackers. It is just what they are for.

So what are you actually paying for?

Three things, and if a paid guide does not deliver all three, do not buy it.

Somebody decided what matters. There is an enormous amount of dementia information available, most of it accurate, almost all of it unusable in the moment because it is undifferentiated. Eight pages that somebody with clinical experience has argued down from four hundred is a different product from four hundred pages. You are paying for what was left out.

It is written for the moment, not the desk. Most dementia books are written to be read in an armchair by somebody who is calm. That is not when you need them. A guide worth money is skimmable, in large type, organised by the problem you are having right now rather than by chapter, and it gets to the instruction inside thirty seconds.

It tells you when it is not dementia. This is the part that free printables almost never carry, and it is the part I care most about. Every behaviour page should tell you when the behaviour is not a behaviour problem at all. A sudden change — new confusion, new agitation, a person who was fine last week and is not fine this week — is medical until proven otherwise. It is usually infection, pain, constipation, a new medication or a delirium, and it is a call, not a behaviour strategy. A guide that hands you calming techniques for what is actually a urinary tract infection is worse than no guide.

Four questions to ask before you buy anything

Use these on any dementia product, mine included.

1. Who wrote it, and what do they actually know? A great deal of what sells on the printable marketplaces is assembled by people with no clinical or caregiving background. That is not always a problem for a calendar. It is a problem for anything that tells you what to do about a symptom.

2. Does it tell you when to stop and call someone? If a guide covers aggression, refusal or confusion without ever naming the medical causes that mimic them, it is incomplete in a way that could genuinely hurt your person.

3. Can you see what is inside before you pay? A full contents list is not a lot to ask. If it is hidden, there is usually a reason.

4. Is it specific to where you are now? “Dementia care” as a single subject is close to meaningless. What an early-stage family needs — the paperwork, the driving conversation, the planning you can still do together — has almost nothing in common with what a late-stage family needs. A guide that tries to cover the whole road in twelve pages has covered none of it.

The honest recommendation

If you have not filled in a medication list yet, do that first, on free paper, tonight. It will do more for your person's next appointment than anything you could buy this week.

When you find yourself searching the same question at eleven at night for the third time — how do I get her to shower, why is he like this every evening, is it time for a home — that is the signal that you have moved past what a blank form can help with. That is the point at which paying somebody to have done the sorting is worth it, and not really before.

And if you buy something and it does not help, ask for your money back. That goes for us too.

One thing to hold on to

Whatever you print or buy or download, the safety rule underneath all of it does not change: a sudden change is medical until proven otherwise. Not a personality problem, not a stage, not something to manage with a better technique. If your person is suddenly different from how they were last week, that is a call to their doctor, and if you are unsure, assume it needs assessing and make the call anyway.

No printable, free or paid, replaces that.

Free

When to Call the Doctor, and When to Go — the one-page traffic light for the worrying moments. Red, amber, green — and the sentence to borrow when you are not being heard. The printable caregivers keep on the fridge.

Free · no spam · unsubscribe anytime · from a Canadian physician

If you have got past what a blank form can do: the three stage guides are the sorted version — early, middle and late, each written for the decisions that stage actually asks of you, with the full contents listed before you pay.

See all three guides — CA$59.99 Or start with the Care Binder — CA$14.99 →